May 21, 2012
 
 
Medical and Care Facilities

 
 
li Indiana Center of Excellence
li Genetic Testing Facilities
li Nursing Homes
li Contacts, Other
li Contact
 

Indiana University Medical Center in Indianapolis is home to a Center of< Excellence for Huntington’s Disease. Through a multidisciplinary health care team, the Center provides comprehensive services for people
affected by Huntington’s Disease. Services include:

- Medical evaluation and treatment
- Social services
- Genetic counseling
- Research opportunities

For more information:
Social worker: Leo Rafail, (317) 271-0624
Toll-free 866-488-0008, info@hdsaindiana.org
Nurse: (317) 278-5450
Toll-free 866-740-1941
General information:mailto:%20info@iuhdclinic.org
Web site: http://www.iuhdclinic.org/

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Genetic Testing Facilities

Indiana University Medical Center
Department of Medical and Molecular Genetics
Medical Research and Library Building, RM IB-130
975 W. Walnut Street
Indianapolis, IN 46202-5251

Contact: Kimberly Quaid, PhD
Phone: (317) 274-2241
Fax: (317) 274-2387

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Nursing Homes

ACLF/NURSING HOMES

State Long Term Care Ombudsman Program
Indiana Division of Aging & Rehabilitation Services
P.O. Box 7083-W454
402 West Washington Street
Indianapolis, IN 46207-7083

Phone: (317) 232-1750
FAX: (317) 232-7867

In-Service Training

Nursing homes and hospitals from throughout Indiana have improved the quality of life for their employees and those patients who have HD. They have done so by opening their doors for in service training focusing on Huntington's Disease. The social worker spends from 45 to 90 minutes assisting the caretakers at these facilities. All staff members are encouraged to attend. Housekeepers, dining employees, RD's, speech pathologists, nurses, administrators, and social workers all benefit from the information taught at the training sessions. 

Learning more about the disease helps the care takers improve the care which they provide. This, in turn, makes their jobs easier and more effective. The better care improves the patients life. With these improvements, the family of the patient are more at ease and more confident in the care provided by the facility staff. When the facilities take advantage of this service provided by the chapter, everyone benefits ! 

As part of the training, a Pre-test and a Post-test are administered. This step allows the training to be recognized by some sanctioning commissions. Please check with your governing body for specific regulations. An evaluation of the training is also distributed for the participants to complete. The comments and suggestions made by the staff members have helped to improve the training for future participants. 

Due to the 24 hour - 7 day nature of healthcare, not all caretakers are able to attend the same session. Therefore, the chapter is very flexible with regard to the number and time of day for in service training.

If you have a patient who has Huntington's Disease, or if you have an interest in learning more, contact the chapter social worker below:

Leo Rafail, (317) 271-0624, Toll-free 866-488-0008, info@iuhdclinic.org

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IN Chapter HDSA --- P.O. Box 2101, Indianapolis, IN 46206 --- (317) 271-0624 ---mailto:info@hdsaindiana.org